Tuesday, March 11, 2008
Today Melissa had her CF appointment and she is doing well. Once again her doctors and CF staff are pleased that she is gaining weight and her lungs are still clear! That's a HUGE blessing. The CF staff loves Melissa and always looks forward to seeing her. Her nurse's are the biggest fans. They have watched her grow up. Melissa was only 2 weeks old when she met them. The next visit is on June 10th. She will be almost a year old.
Here are some pictures I took today of Melissa and the CF Staff at Children's Hospital of Dallas.
Melissa waiting for the Staff to come in
Melissa's with her Dietitian
Melissa with her Social Worker
Melissa with one of her Doctors
Melissa and her Nurses
A few quick things to consider:
CF is the most common, fatal, genetically-inherited disease among children and young adults in the US.> About 30,000 people in the US have CF.
The average life expectancy of a CFer born today is about 37 years. Although, many still never make it past infancy, and some will live well beyond 37.
An additional ten million more people (about one in every 31 Americans) are carriers of the defective CF gene, but do not have the disease. There is no cure for Cystic Fibrosis, but there will be one day